Monday Musings
4 years ago
Monday, August 24, 2009
Wednesday, August 12, 2009
Just an update
I have no pictures to post because our computer has not been working for the past 2 weeks...we are hopefully getting it back today in working order! I thought I should write a little update on the kids so that I don't forget this stage they are going through. They will be 2 years old in only 2 weeks and I am not sure where the time has gone!
Ashlyn - continues to amaze me. This is a little girl that had a grade IV intra-ventricular hemorhage at birth and she is now walking and talking. Grade IV means that the bleed was so large that it leaked out of the ventricle and caused further damage to the white matter of her brain. There are no higher grades. We were initially told that she would be profoundly impaired and that we may need to make decisions surrounding "life vs quality of life". I am so glad that God chose another path for her. There are definitely signs of of her brain damage, but she continues to surpass all my expectations. She is still quite unsteady on her feet and falls frequently...she has more bruises and scrapes than any child I know, but it does not slow her down. She gets right back up and keeps going. Her strengths are definitely in her fine motor skills and cognitive skills. Her favorite phrase lately is "Oh No!" and she says it very frequently. Other new words include, shoes (for which she continues to have a fetish), milk, juice, nose, and others that I can't think of at this moment :). She finally knows the difference between her g-tube scar and her belly-button, she likes to give kisses and hugs and she is starting to walk up and down the stairs instead of crawl. She is becoming a very sweet little girl.
Caelan - is definitely all boy. He has become a bit of a bully toward his younger sister lately, which does not make me happy. He wants whatever she wants and pushes her out of the way to get it. He laughs if I scold him and he thinks everything in life is a big joke. He loves it when he sees a plane in the sky or hears a train. He now says "wooda" for "What's that?" and "hi", but the rest is all jibberish. He walks up and down the stairs, loves to rough-house with his big sister Shaylah and loves to eat. He is becoming such a big boy so quickly and has a very fun personality.
Ashlyn - continues to amaze me. This is a little girl that had a grade IV intra-ventricular hemorhage at birth and she is now walking and talking. Grade IV means that the bleed was so large that it leaked out of the ventricle and caused further damage to the white matter of her brain. There are no higher grades. We were initially told that she would be profoundly impaired and that we may need to make decisions surrounding "life vs quality of life". I am so glad that God chose another path for her. There are definitely signs of of her brain damage, but she continues to surpass all my expectations. She is still quite unsteady on her feet and falls frequently...she has more bruises and scrapes than any child I know, but it does not slow her down. She gets right back up and keeps going. Her strengths are definitely in her fine motor skills and cognitive skills. Her favorite phrase lately is "Oh No!" and she says it very frequently. Other new words include, shoes (for which she continues to have a fetish), milk, juice, nose, and others that I can't think of at this moment :). She finally knows the difference between her g-tube scar and her belly-button, she likes to give kisses and hugs and she is starting to walk up and down the stairs instead of crawl. She is becoming a very sweet little girl.
Caelan - is definitely all boy. He has become a bit of a bully toward his younger sister lately, which does not make me happy. He wants whatever she wants and pushes her out of the way to get it. He laughs if I scold him and he thinks everything in life is a big joke. He loves it when he sees a plane in the sky or hears a train. He now says "wooda" for "What's that?" and "hi", but the rest is all jibberish. He walks up and down the stairs, loves to rough-house with his big sister Shaylah and loves to eat. He is becoming such a big boy so quickly and has a very fun personality.
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