Wednesday, August 12, 2009

Just an update

I have no pictures to post because our computer has not been working for the past 2 weeks...we are hopefully getting it back today in working order! I thought I should write a little update on the kids so that I don't forget this stage they are going through. They will be 2 years old in only 2 weeks and I am not sure where the time has gone!

Ashlyn - continues to amaze me. This is a little girl that had a grade IV intra-ventricular hemorhage at birth and she is now walking and talking. Grade IV means that the bleed was so large that it leaked out of the ventricle and caused further damage to the white matter of her brain. There are no higher grades. We were initially told that she would be profoundly impaired and that we may need to make decisions surrounding "life vs quality of life". I am so glad that God chose another path for her. There are definitely signs of of her brain damage, but she continues to surpass all my expectations. She is still quite unsteady on her feet and falls frequently...she has more bruises and scrapes than any child I know, but it does not slow her down. She gets right back up and keeps going. Her strengths are definitely in her fine motor skills and cognitive skills. Her favorite phrase lately is "Oh No!" and she says it very frequently. Other new words include, shoes (for which she continues to have a fetish), milk, juice, nose, and others that I can't think of at this moment :). She finally knows the difference between her g-tube scar and her belly-button, she likes to give kisses and hugs and she is starting to walk up and down the stairs instead of crawl. She is becoming a very sweet little girl.

Caelan - is definitely all boy. He has become a bit of a bully toward his younger sister lately, which does not make me happy. He wants whatever she wants and pushes her out of the way to get it. He laughs if I scold him and he thinks everything in life is a big joke. He loves it when he sees a plane in the sky or hears a train. He now says "wooda" for "What's that?" and "hi", but the rest is all jibberish. He walks up and down the stairs, loves to rough-house with his big sister Shaylah and loves to eat. He is becoming such a big boy so quickly and has a very fun personality.

4 comments:

Shaun and Holly said...

Thank you for the update. So hard to believe that it has been almost 2 years since the babies were born!! Time sure does fly...
Looking forward to seeing more puictures when your computer co-operates!
Love,
Holly

Louise Chapman said...

I can't believe they are almost two! I didn't know that Ashlyn's condition was that serious when she was born, what an amazing little girl. I am also looking forward to seeing more pictures of your beautiful kids!

Anonymous said...

Amazing! Hopefully the medical profession is following up on these beautiful little miracles. You may have to write a book, Marsalie!
Love, G.U.Lloyd & G.A.Ann

lewis fam said...

Thank you, Marsalie, for this update. I often wonder how the 'babies' are doing.

I was so teary in reading about Ashlyn...the strength & faith you all have shown throughout this is inspiring to so many.

Hope the computer is fixed.

Enjoy this beautiful weather!!!

= )